UPDATE:
We had met up with the team the second time a while ago. We sat down exchanged thoughts and discussed on how we could proceed to help determine C's real wish. We did agree not to rush towards a decision until C was ready. Would continue to gather feedback and ideas as we move along.
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There were those who asked for equipment, room makeover or a trip to somewhere etc. For C, he asked to see the night parade (at Disneyland). Often squealed with delight whenever the heavily lighted floats ferrying different cartoon characters appeared on Disney Junior.
Well, I could have asked for a powerchair like I mentioned in an older post but instead left the option open till C wishes for something that meant to him. It wasn't until after much persuasion by the nurses and social worker recently that I agreed to put up C's request.
Unfortunately C's wish for 'a trip to Disneyland to see the night parade' came down to 'a trip to the fire station' because of something he had said, "I want to be a fireman when I grow up" in response to the question they asked. Merely because they 'couldn't get anything out from him' as C was immensely occupied with the new toys they bought.
It's a child's one in a lifetime wish and I totally understood that it had to come from the child himself. But I expected them to do more to ascertain the authenticity of it; how much genuineness was in his wish by asking the right questions and collecting relevant information.
They never found out why C wanted to see the night parade. They didn't know his favourite character was Pluto (not Mickey), less know that C loved singing and dancing along to "Mickey Mouse Club House" & "Hotdog" songs.
Perhaps it could have been worse if they asked for his favourite food? (It's chocolate cake by the way), we could end up at the bakery. Just saying...
I was upset and disappointed. Upset that his wish was not granted. Disappointed that his wish was taken lightly (they never got to know why). The (only) alternative offered to us (even after I asked for other options) was no where close to the original wish. It was never about the monetary value to begin with BUT it would have been fitting and apt if they had offered Universal Studios to see other characters of his liking; to watch Chuggington Live or equivalent. I would be equally grateful to them for making C happy.
Honestly, the trip to the fire station could have been fulfilled anytime on our own easily (no costs/logistics/coordination involved). To be fair, they did offer to pay for the cab. Still it's baffling and annoying me to the max.
Tell me what you think.
