Taken in Aug - grown up look |
Taken in Sep - Chubby Caelen |
Physiotherapy and any form of exercises are now tedious tasks for C, they tire him out easily. Simple task like holding a spoon became a struggle (he now uses a small KFC plastic spoon to eat instead). Passing his milk bottle to me became a chore and he chose to throw in on the bed. Removing his pants and diaper were no longer the things he loved to do. These were some of the things about SMA we grew to embrace and accept. With little adjustments here and there, we went on with life as usual.
Oh there is one thing to be excited about. We found a home-based teacher for C! He will be starting his first lesson next week. This is something sitting on my wish list for the longest time (ever since I started this blog), waiting to be fulfilled. I think C is excited about attending lessons too. Let's hear what he has to say:
Hope to bring you more updates on his lesson very soon!
Good to know that both Caelen and mummy are doing well! Caelen is really such a sweet boy. Thanks mama for keeping us updated. :)
ReplyDeleteShermaine
Little Caelen, you are such a hardworking boy. Jia you ok?
ReplyDeleteThank you mummy Lowell for the update. Hope you take care too.
Jolie
Hi Lowell. Hope Caelen has been enjoying his lesson. The haze is bad, hope your family take care.
ReplyDeleteClasses did not proceed as planned. Teacher was down with a fever and only be able to resume in Oct.
ReplyDeleteHaze is bad. C has been affected. Increased secretions, coughing & choking and desaturation. I have been pumping more med than I like. Anyway it's still manageable.