24 December 2014

Christmas Eve

Yes! We have a chair for Christmas!! It arrived on 23 Dec, the best Christmas gift for C ever. Thank you all for making it possible.

Engrossed in his games on tablet

Little boy now spends a fair amount of time on his chair in the day for various activities e.g. drawing, playing games and toys, meals, reading etc.

See how it actually fits in our (very squeezy) room and love the fact that it's slim enough to maneuver to different parts of the house. If you also noticed,  C's head is barely touching the headrest, leaving plenty of room for growth. This chair is definitely going to last us for quite a while.

This year instead of keeping to the usual stay-at-home Christmas, we have decided to throw a small party. Gone is the 1.8 metres tree. I reckoned that it's going to be more of hazard than pretty display. This has thus been replaced by a petite 1.2 metre neat looking one which complements the gingerbread house that I painstakingly painted over the last 2 weeks. Can't wait for the party tomorrow! Will definitely update with more details after the event.


Here's wishing all a blessed Christmas filled with love! Oh yes, C wishes everyone a Merry Christmas too!
(In case it doesn't load, you may view video at http://youtu.be/WwNkSky2Atc)


11 December 2014

A Month Full of Love & Sharing

December is my favourite month of the year. It is a month of celebration, sharing of love and gifts. It also marks the end of a long eventful year and the beginning of a brand new, better one (don't we all wish for that huh?). A happening month means more to cover. Therefore, I shall keep my entry short (finger-crossed).

Little C was warded for the 4th time this year on 26 Nov 2014. Oxygen level was low accompanied by a chesty cough and high fever. It was a short 2-day stay but an unforgettable one. I was startled by two familiar voices in the high D ward at 3.30am. For a moment, I thought I was dreaming and disregarded it. Seconds later, I heard a familiar name and the same voices in the background calling out in distress. It was C's pal, Kaelyn, in the same ward just a bed next to us curtains drawn. It was a tense moment, I felt absolutely awful and I wish never to have to go through it again. I was glad Kaelyn and C made it home in full recovery.

Moments after C's story was published in the papers, a NYP student wrote to ECDA on our behalf to find out the possibility of providing an education for C.

Hubby and I saw a high level of maturity, sensibility and initiative in this young man and found his action admirable. We need more like him don't you agree? That will make a lot of difference to this not-so-pretty society I see today.

Meanwhile, we have also received messages from the public offering to help C in unique ways. Some offered to provide free clinic consultation and others healing therapy. A lady wished to dedicate a section in her retail outlet to sell my bento tools/accessories just so I could concentrate on caring for C and  not keep myself busy attending to business queries and sales.

How very thoughtful of these folks!

Their 'loot' - toys, books, stickers and cake
Just last week, a kind gentleman, Mr Loh, took time off work to bring the children Christmas shopping at Toy 'R' Us. Cayla was over the top excited, ran all over the store, grabbed every boxes of toys she fancied >_<|||

Poor daddy mommy were busy distracting her and returning the boxes to their original places. At the end of the day, all I could say is that Mr Loh made the children very happy. They hardly get the chance to do a shopping spree (neither do I hahaha, kiddin').

Been 2 years since we last had a Xmas tree
There were also 2 beautiful ladies, Lynda and Shirley, who came by our place to visit C. They brought me lunch & coffee, presents for the children, books, Christmas tree and accessories. It was our first meeting and I was overwhelmed by their generosity. They stayed to set up the tree and kept C entertained. The finished project - simply beautiful. I even bought a Gingerbread house to complete the look. All I need now is to finish painting the house.

To Mr Loh, Lynda and Shirley, you brought light and love to our home, brought joy and put smiles on our children's faces. We thank you for making a difference to our lives. I hope our relationships will blossom into long-lasting friendships in time to come.


While updating this blog, the funds from Indiegogo campaign has came through.
The breakdown of the total funds raised (all amount quoted in SGD) is as follows:

Indiegogo campaign - $14,288.11
Cheques/bank transfers - $5,610.00
CDA - $1,500.00
Grand total - $21,398.11 (as of 10 Dec 2014)

Here is how we wish to utilise the funds:

Tomato chair - $3,390.00 (still waiting for delivery)
Cough assist machine - $6,527.00 (recommended by therapists during C's hospital stay)
Buggy for Kaelyn - $3,500.00 (to help a fellow RDSS family purchase a machine)
Blessing for Danielle - S$1,000.00 (to help a fellow RDSS family with consumables)
Pledge a meal - $500.00 (this will cater more than 60 packed meals as initially intended)
Remaining funds - $6,481.11 (of which $1,500.00 is in CDA non-withdrawal account)

A heartfelt THANK YOU to all funders! We can never thank you enough.

Finally, a quick update on C's health status. His recent sleep test results came back. Nothing very much conclusive. I was told that his didn't achieve deep sleep at particular BIPAP settings. Tech titrated the settings throughout the night and they went as high as 15/7 (if this even make sense to the general public). C previously was on 12/6 and had increased to 13/7 while in hospital. To keep the story short, doctors would like to increase the settings at a rate C is able to cope with. Therefore they will keep the BIPAP at 13/7. All in all, C seemed to be in good shape for now. Can't wait to celebrate Christmas with my folks!