15 September 2015

I Am Going To School

Taken in Aug - grown up look
Last week C and I both came down with a fever. I had a really bad throat and was worried C might be having the same. Luckily, whatever bugged us went away as quickly as it came and we had been staying indoors since largely due to the haze.

Taken in Sep - Chubby Caelen
C had been 'eating' well and putting on quite a bit of weight, looking chubbier these days. Although growing bigger, he was also weaker. The strength he initially possessed now seemed inadequate to serve his bulkier body. At sitting position, his head "dropped" more often than desired. The other day, while using both hands to support his chin, he said to me," Mommy, mommy, help me! My head is too heavy! Can I take out my head?". Funny things he say...

Physiotherapy and any form of exercises are now tedious tasks for C, they tire him out easily. Simple task like holding a spoon became a struggle (he now uses a small KFC plastic spoon to eat instead). Passing his milk bottle to me became a chore and he chose to throw in on the bed. Removing his pants and diaper were no longer the things he loved to do. These were some of the things about SMA we grew to embrace and accept. With little adjustments here and there, we went on with life as usual.

Oh there is one thing to be excited about. We found a home-based teacher for C! He will be starting his first lesson next week. This is something sitting on my wish list for the longest time (ever since I started this blog), waiting to be fulfilled. I think C is excited about attending lessons too. Let's hear what he has to say:

 
Hope to bring you more updates on his lesson very soon!

4 comments:

  1. Good to know that both Caelen and mummy are doing well! Caelen is really such a sweet boy. Thanks mama for keeping us updated. :)

    Shermaine

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  2. Little Caelen, you are such a hardworking boy. Jia you ok?

    Thank you mummy Lowell for the update. Hope you take care too.

    Jolie

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  3. Hi Lowell. Hope Caelen has been enjoying his lesson. The haze is bad, hope your family take care.

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  4. Classes did not proceed as planned. Teacher was down with a fever and only be able to resume in Oct.

    Haze is bad. C has been affected. Increased secretions, coughing & choking and desaturation. I have been pumping more med than I like. Anyway it's still manageable.

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